The damage is done

Posted By: Adam 3 Comments
The first thing that went through my mind this morning as I was climbing out of bed, trying to stretch out the aches in my back and the pains in my hips and legs, was how disappointed I was that I wasn't on my way to Dr. R's office to have my first dose of Remicade administered. I've heard and read of people having a positive reaction (stiffness and pain disappearing) as quickly as during their first infusion, and to be honest – that's probably the worst possible thing for me to have heard at this point. I am the classic hope-getter-upper. The damage is done. My hopes are up and like a kid who convinces himself he's getting a puppy for Christmas, if I don't get what I want, I will be sorely disappointed. No amount of telling myself that it won't be the end of the world will save it from ending in my mind. I will be inconsolable and incommunicado for a few hours, and then once I've gotten it out of my system, I'll be right back where I am now: With high hopes for improved results in the near future. To be fair, I will be happy if the treatment works at all. The thought of spending the remainder of my time on this earth in the same or a worse state (like New Jersey! Ha!) is depressing. If it helps enough for me to play an active role in my children's development – running, wrestling, etc – and enough for me to be a good companion (instead of a cripple) to my wife, then I don't care if it takes a week or a year to get there. My dad used to say something to the effect of, "I would shovel shit out of a ditch if that's what I had to do to put food on the table;" and at the time I knew it was his way of telling us that he loved us. Only now – having found someone I care for in the same way, and approaching the cusp of starting my own family – do I actually understand what its like to feel the same way about my loved ones. As much as I say it's a miserable feeling living this way, and how I dread the thought of different treatments not working – I would endure it for 10 lifetimes with a smile on my face just for the opportunity to share that time with them.

3 responses to “The damage is done”

  1. I think the saying was "dig ditches" not so much what you said - but I'd do that too if that was what was needed to take care of my family.

    Glad to see it stuck with you.

    Hang in there. Sounds like a promicing regiment.

    DadT

    DadT ~ Aug 4, 2008 at 9:56 PM

  2. You're quite a guy, Adam. Hang in there. Although I've suffered in different ways than you, I understand how patience can run thin at times. Your positive attitude is beyond admirable.

    ED

    ED ~ Aug 4, 2008 at 9:56 PM

  3. ~sigh~

    MomT

    MomT ~ Aug 4, 2008 at 9:56 PM